THE WORLD SHE NOW LIVES IN
In a few days I will be arriving in Florida to see my mother. I did this for the last three years, allowing me to spend an entire month with her. I usually feel a combination of excitement and nervousness yet this year, I am scared.
My brother recently sent me a video which upset me. Mom seemed far more advanced, almost as if she did not exist. She said a few words, was unresponsive not having much expression. I am hoping that with my daily visits she will somehow reappear.
This past Friday night as I was thinking I knew all too well that she had no idea of the day, time or year. She is unaware that I will soon be coming to see her. She most likely has no idea that I even exist. The world that is so present in my universe does not exist in hers.
It feels as if Alzheimer's has taken over. It has conquered and left mom with little awareness of any life on this planet. She is locked away in a land of make believe, a land of no existence. I am grateful that she appears not to be suffering.
This journey that we are now on is getting much more difficult. I am filled with guilt and sadness, at moments wanting her to go to sleep. How could I wish for this with my own mother? Am I cruel, or am I humane?
While she is still alive she rarely ever smiles. When someone with Alzheimer's does not smile, and shows little emotion, it appears that they are nearing the end. In mom's case, I have to believe, given her constitution, the end is not so near.
I miss her deeply and being able to touch her face and hold her hand should be enough, yet it still sharply pains me. How I yearn to share my life with her and wish that she could really understand when I whisper the words " I love you".
Alzheimer's is a cruel disease that wipes away ones dignity and life as it enters and attacks their brain cells. Some people succumb rather quickly while my mother has Alzheimer's for fourteen years and still counting.
At this moment many scientists are searching for a prevention or cure and are hoping that within 15- 20 years it will come. That is a long time away but for future generations it would be a blessing.
MY MOM MY HERO - A mother & daughters new found love. http://www.amazon.com/Mom-Hero-Alzheimers--daughters-bittersweet/dp/0615773982/ref=sr_1_1?ie=UTF8&qid=1454248406&sr=8-1&keywords=lisa+hirsch