Thursday, June 3, 2021

COULD I BE MOURNING MY MOM ?


 COULD I BE MOURNING MY MOM?

It's been almost five months since my mom passed away. I hardly cried and have been, with all honesty, relieved that she was finally at peace. Although this is something that I prayed for the last three years, I am only now getting in touch with my deepest feelings and realize I no longer have a mother to think about, worry about nor take care of. 

My stomach feels like it is in knots, and my back has had spasms for almost three weeks. Since I do get an occasional back pain I wonder if this could all be connected? Maybe yes and maybe no. Maybe it is the aftershocks of Covid and maybe it's the passing of my mother. Could it be that I am getting older, and reality is setting in?

With all that had transpired with my mom for the last 16 years (since she got Alzheimer's)writing has  been my answer for expressing my deepest inner feelings. I miss her and have so for longer than the last five months. I have missed not being able to confide in her. To tell her and share my happiness as well as my fears. I miss what had turned into our reversal of rolls. I miss, even more our childish loving exchanges for the last 16 years. I miss our telephone calls and how she made me laugh. I miss her new found Buddhist ways. I miss all the times we disagreed and our silly arguments . I miss her deep love and caring for me even if at the time I did not realize it. I miss holding her hand as she slipped further and further away from this universe, as her world was disappearing. All in all, I miss everything about her.

I am starting to mourn a loss of a parent. A mom whom I was not always close to, yet a mom who I ended up respecting and admiring so deep in my soul. A woman who showed me courage and a woman who became my shining star.  

I love you so deeply mom as you will always live on in my heart and soul.


I have started a Group for anyone who would like to honor, share a memory of a loved one who has passed away from any Form of Dementia. This group belongs to ALL of us.




Both books available on Amazon
Alzheimer's My Mom My Hero
Letter To My Mom

Sunday, April 4, 2021


 


 

AFTER..."OUR" LONG GOODBYE

I have hardly had any sadness since my mom passed away, nor have I cried. Yes, there is a pang in my heart if I think of her, yet I seemed to have moved on.

When friends & family asked me how I feel, or how am I am doing, my answer was mostly the same; “For the last three years I had prayed for my mom to have peace. There was hardly any life as she mostly slept or was slumped over in her wheelchair, her eyes shut closed. An existence that I would never want, nor did she.”

Just the other day I decided to reread the 2 books that I wrote about our journey together since mom had Alzheimer’s. After reading the first several chapters of my first book, My Mom My Hero, to ease the pain I think I subconsciously buried all the wonderful things mom and I had shared together.

Since we lived in different states, I would call her daily. I would be amazed at all the Buddhist like things she would say. We would speak for quite a while and laugh at the silliest of things like two teenage girls. We would sing together and have spelling bees where she mostly scored 100. This always baffled me since at times mom could not remember my name, yet she could always spell magnificently.

It was not always upbeat. I had moments of great concern when she seemed to be hallucinating. I later found out this was caused by a urinary tract infection. After if she showed any signs she would get tested, and if positive would be put immediately on an antibiotic.

I now feel that after her death all the emotions that have been dormant will surface. Although there may be some tears and heartache, I want to return to a place in time where my mom even with Alzheimer's was, to me, the most special lady. I fell in love with her unconditionally and she will always remain in my heart. Her strength and courage through all the years of her illness was something that I greatly admired. I now wish consciously to celebrate and honor her life not bury it.


I have started a Group for anyone who would like to honor, share a memory of a loved one who has passed away from any Form of Dementia. This group belongs to ALL of us.

Tuesday, February 23, 2021

A TRIBUTE TO MY MOM


A TRIBUTE TO MY MOM
 

As my mom transcends to an after life, if one believes in that, I am in awe of all the wonderful sweet loving moments we were able to share. I am fortunate to have many photos and videos of her, that capture her sweetness, humor, and innocence that I so treasured throughout the years.

As I witnessed her disappearance from the life she once had, I hold close to me all the joy she brought to me through her sixteen year battle with Alzheimer’s disease. 

As her world was diminished, each day leaving her with less memory, my love continued to grow.

I remember how for years mom walked the halls for hours in her nursing home, blowing kisses to all those who worked there, and, asking many to join her on her walk to "nowhere".When I visited and was by her side, they would sharewith me how much they loved her.

Mom, a woman in her late 80’s for years searched for her parents  wishing to find them and go home.  I always believed she was going back to a time and place in her childhood where she felt the most loved and secure.

In many ways my mom was different after she got Alzheimer’s. Fortunately, for me, it opened my heart to a new relationship with her, as I fell unconditionally in love with her.

On Monday February 1st, mom went into respiratory crisis and was put on oxygen and morphine along with 24 hour hospice care. They had instructions that mom's  own wishes was not to have any medical treatment to prolong her life; they reassured me that they would only offer comfort care. At 1:20 AM February 5, 2021 the phone rang and awoke me and my husband. I did not need to answer to know what they were calling about.It was the nursing home telling me that they were sorry that my mom had passed away at 12:58 AM.Hanging up the phone I said to my husband that my wish and prayers for the last three difficult years had finally been answered. Mom had finally found peace.

Through the last 3 years I have cried and prayed for this day.  I have cried about all the years that she could not appreciate a beautiful sunny day or take a walk on a beach. I have cried about her not remembering my father or her children. I have cried that she could not remember her one and only grandson whom she adored. I cried that she was not aware he got married, has a child of his own, or could see the young man he became. I cried as her world disappeared into no existence. The one saving grace was that with her newfound innocence and childlike ways l was  so grateful that we were able to smile and laugh together like two teenage girls.

As I reminisce, I realize that I want to celebrate my mom’s life and not her passing. For the last 16 years as the disease progressed she lived  in a prison,yet mom never complained and showed as much love as she possibly ever could. She would say things that truly inspired me, became my Buddha and I looked at her in awe and wondered what she was thinking.

I remember how during the first few years of her illness she would constantly repeat “if you have your health you have everything, that is all I wish for my children. “

Sunday February 7 th the day of mom's funeral hit me like a ton of bricks.I did not want to get out of bed. Due to Covid, since my husband, son and I lived in NY we would participate together as one family on Facetime. My brother and fiancĂ©e, living in Florida, would go to the cemetery. My brother called so I could say my final goodbyes to my mom. She looked beautiful as she was wrapped in a white shroud which is a Jewish tradition. She looked at peace, a place that I had yearned for the last three years. I told her how much I loved her and asked my brother to kiss her for me. We performed our own service with eulogies, meditations, and Jewish prayers. Tears streamed down my face yet there was a beauty and calmness to the moment. Mom would be placed next to her husband, my dad who passed away over twenty-five years ago.

I never was one that believed in going to heaven, nor an afterlife, yet today I thought, if it is true, mom will also be reunited with her parents as well as her brother.

I had prayed for this day for quite a few years knowing that when it did come that it would be a blessing for my mom. I would miss her deeply but there would  also be a relief for me, for everyday here forward I would not have to worry about her. My mom is gone forever, and I now like so many others my age have become “parentless”.

As cruel a disease as Alzheimer's is we were able to share several wonderful years filled with lots of love. My mom gave birth to me, raised me and as our roles reversed it was a blessing to care for her as she once did for me.

My mom Ruth Elian may you Rest In Peace. You became my hero with your humor & your magnificent ways.


I have started a Group for anyone who would like to honor, share a memory of a loved one who has passed away from any Form of Dementia. This group belongs to ALL of us.

Thursday, January 28, 2021

THE LONG GOODBYE


Picture is from 2012 (mom already had Alzheimer's)

THE LONG GOODBYE

I haven't seen my mother since the pandemic began in March 2020.Without any notice, mom's nursing home was shut down like so many others around the country. As of now, only with a scheduled appointment would I be able to visit her outside. Since she resides in Florida and I live in New York that sadly is not possible as of now.

I guess the next best thing is being able to FaceTime with her. Mom can no longer see due to macular degeneration. Her eyes remain closed mainly because of Alzheimer’s . With some wonderful assistance from hospice staff when they visit, or an employee from the nursing home, I get to see and speak to her every few weeks.

When these planned calls transpire I see my mom either lying in bed or slumped over in a wheelchair. Her eyes are closed yet when she hears the sound of my voice I know that not only does she hear me, she also recognizes my voice, as she nods her head in an up and down motion. Sometimes her eyes flutter as she tries to open them. I tell her how very much I love and miss her as her head still moves to let me know she is hearing me. The very first time we did the FT call I was anxious yet, as we proceeded, tears rolled down my face and at that moment I was glad that she could not see me.

The head of nursing who I speak to frequently called to tell me that my mom lost 3 more pounds and now weighs 76 lbs. She mentioned that her skin color is good and it's amazing that the wound on her leg had healed. She continues to say that she is not eating and the weight loss is not a positive thing. I pray to myself once again wondering if mom is finally getting ready to let go.

As my mind clears, I once again pray that mom would just go to sleep, something that I have wished for these last several years. I hope that in 2021 she will finally find peace for this has been a very "long goodbye".

As I think back about the last eight years I am so touched by all the love & support that my Blog & FB friends have given me. It has been a long journey for most of us and I am so grateful and thankful for all of you. We are a “ family” that unfortunately have walked similar paths and we all have an appreciation and understanding of what all of us are going through.

I am thinking of our loved ones and the families who suffer from this horrific disease, and hope that we all stay safe through this pandemic .





"Letter To My Mom" & My Mom My Hero are both available on Amazon worldwide. Ebook, Audio, Paperback.