Monday, March 27, 2017

ROLLER COASTER RIDE


ROLLER COASTER RIDE

Since mom became quite ill during my visit in January I have been affected in many way. Just watching her disappear from Alzheimer's for the last fourteen years had been grueling enough. I had to accept that her world was climaxing and could end rather quickly.

Even though I have prepared myself, I realize that when the time comes I will be in mourning for the loss of my mother. She will become just another statistic and I will be parentless like so many others my age.

People often ask if I fear that I will get Alzheimer's. My answer is always the same. I do not fear it, although I am aware, when I cannot remember something as simple as an actor's name. Not only does my mother have Alzheimer's her younger brother also had it and passed away within a few years. I recognize that my chances are greater than someone else whose family has no history of this disease.

Amazingly enough mom's "world", if only, for the moment has changed. Changed in a way that I was not ready for, nor, maybe I didn't really wish to happen. She seems to have bounced back with a reborn energy. Her nurse reassured me that mom was once again back to "herself", feisty, eating well and maybe even better than before. My immediate reaction was feeling elated yet mixed with some sense of reality. I went so far as to fantasize that mom who is 92 years old might now live to 100.

My heart previously had been telling me that mom had given up. Once again she has proved me wrong! Or should I say knowing all too well, that this "rebirth" may only last for a day, month, or year until mom can no longer go on.

While I am on this whirlwind I cannot help but feel the bumps and curves as Alzheimer's continues to speed along its tracks. There are so many times I wish for this ride to come to an end.

Why am I not fully able to go with the flow? Am I not prepared for this roller coaster ride? I know that I am not being a pessimist. Could it be that I am just being a realist? How silly of me for how could I not want  mom to have "good "days. Of course I do. For some, this may seem like a miracle yet anyone who understands this disease knows that it cannot last.

In the world of dementia the patient does not get to win. There is no cure.



 MY MOM MY HERO - A mother & daughters new found love. http://www.amazon.com/Mom-Hero-Alzheimers--daughters-bittersweet/dp/0615773982/ref=sr_1_1?ie=UTF8&qid=1454248406&sr=8-1&keywords=lisa+hirsch

Sunday, March 5, 2017

THE FINAL CHAPTER



THE FINAL CHAPTER


For the last fourteen years I have witnessed my mother slowly disappearing from Alzheimer’s. With a heavy heart I go through the process of grieving and realize that through my writings I have begun to heal myself.
Is it possible for me to share all the feelings that are so deeply embedded within my soul?

This past January my husband and I were in Florida where mom resides (in a nursing home) to spend every day with her. In the past four years, each January, we witnessed mom transform day by day as she became more aware of the world around her.

I had realized that mom would not be like last year yet I could never have imagined that from a bad cold, her world and mine would shatter.

I mainly sat by her side, held her hand, stroked her face and told her how much I loved her. Mom has now entered into in the last stages of Alzheimer’s. How I wish that I could have her peacefully go to sleep; instead of what could take many months or years for her to say goodbye.
Her words are now seldom, her eyes mostly shut closed. Her walking around the nursing home has come to a halt for she no longer has the will nor energy to carry on.

She occasionally opens her eyes and, once in a while, she would smile. I was able to steal a few kisses yet even the sound of music that once delighted her, could not bring forth any signs of joy.
Witnessing her withdraw from the world was quite painful. As my thoughts surfaced I took to pen and paper to share my most inner deep feelings. My prayers were not answered as I had prayed for her to pass away. I knew that mom would never want to exist like this. I also wanted to take away the pain I was feeling, knowing that there could be no recovery.

I question why my mom got sick while I was here? Why couldn’t we have been able to share some special moments like we had done in previous years? Couldn’t she have waited to after I left? How silly of me to even think this way.  I know no one gets to choose when or where.



MY MOM MY HERO - A mother & daughters new found love. http://www.amazon.com/Mom-Hero-Alzheimers--daughters-bittersweet/dp/0615773982/ref=sr_1_1?ie=UTF8&qid=1454248406&sr=8-1&keywords=lisa+hirsch

Wednesday, February 1, 2017

LOVE, LOVE, LOVE


This picture was taken about 6 years ago (mom had AD yet she was still at home). I wrote this blog post in December 2016(not that long ago). So much has changed with mom since then.

She caught a really bad cold and for over a month she now lays most of the time with her eyes shut. She appears to be "lifeless" except for a few moments that I was able to capture with her during my month long visit(January 2017).

Blog Post- Dec 2016

My brother called me the other day while he was visiting our mother at the nursing home. I unfortunately missed the call yet he left a message asking mom to say hello to me. Hearing her  say "Hi Lisa," immediately brought me back to a time when mom was whole. Her voice was filled with strength and definition.

Mom sounded as if she was free and clear of Alzheimer's. Her voice and tone was the mom that I always knew. I wondered how this could be. Is it possible that mom still has moments of being herself? At these times could she have a flashing thought wondering what is happening to her? A thought that disappears as quickly as it comes.

I will never know the answers and maybe it's better that way. My desire is only to protect her from  anything that can cause her heartache or pain. I wish to cuddle her in my arms, as if she were my own child and reassure her that everything will be okay.

I realize that what is left with mom is to try to enjoy whatever moments we have together. I want to sit with her, talk to her, touch her and hold her. I want to sing with her, laugh with her, and just be there for her. I want to show her and have her feel all the love I have for her; never questioning whether she knows if I am her daughter.

There are things that we can never get back yet I want to remember the things that I loved, and also the things she did that drove me crazy.  I want to remember her lectures to me, her humor, her support and all her imperfections. She was never perfect yet neither was I.

She is still my mom, and the journey that we have been on together for over fourteen years has at times been difficult yet, mostly, one filled with love.

I cannot take Alzheimer's from her and though it breaks my heart as I watch her disappear, it  has opened my heart to a place that I did not realize even existed. It has made me closer with her and has turned my love into one that is unconditional.



MY MOM MY HERO - A mother & daughters new found love. http://www.amazon.com/Mom-Hero-Alzheimers--daughters-bittersweet/dp/0615773982/ref=sr_1_1?ie=UTF8&qid=1454248406&sr=8-1&keywords=lisa+hirsch